Table of Contents
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Last Modified: Thursday, November 22, 2007
Table of Contents
(Click on the link to view the selected pages)
| Foreword by Edward L. Bove, M.D. | i |
| Preface by Anna Jaworski | iii |
| Introduction by Judy Norwood | v |
| Discovery | |
| Chapter One: Discovering Heart Defects In Utero | |
| A Brother for Markie by Christine Prior | 3 |
| Learning to Love and Trust God by Kerrie Van Eck | 7 |
| Getting a Better Look by Edie Spears | 13 |
| God Doesn't Make Mistakes by Caroline Ahrens | 20 |
| Chapter Two: HLHS Care Options | |
| Cardiac Transplantation | |
| Happy Lifeday, Little Angel by Amanda Eason | 26 |
| The Right Heart for Travis by Dawn Martin | 30 |
| Compassionate Care | |
| Letting Go by Kari Barr | 35 |
| A Letter to Ethan by Kelley Madden | 39 |
| The Norwood Procedure | |
| Giving Tyler a Chance by Rene Winters | 42 |
| A Born Fighter by Cindy Tishka | 46 |
| Pioneer Woman by Jill Sorensen | 49 |
| Chapter Three: Special Problems, Special Solutions | |
| Feeding Problems by Jennifer Nachbur | 54 |
| Developmental Delays—Physical by Caroline Ahrens | 56 |
| Developmental Delays—Speech and Language by Anna Jaworski | 62 |
| Support | |
| Chapter Four: The Life Givers | |
| My Special Son by Karen Brandle | 71 |
| Hope in Tomorrow by Bonnie Munden | 76 |
| My Son, Heart and Soul by Jeanne Imperati | 82 |
| Chapter Five: More than a Mom | |
| Taking Care of Things by Anita Moreno Marcelo | 90 |
| Never More Than You Can Handle by Brenda Vignaroli | 93 |
| A Stepmother's Story by Karen Pritchett | 98 |
| Chapter Six: Military Moms | |
| In the Navy by Gabriele Stiltner | 102 |
| The Army Way of Life by Lou Ann Wright | 106 |
| Overseas with the Air Force by Shiloh Hanshew | 112 |
| Chapter Seven: Grandmothers' Stories | |
| Part of the Team by Carol Self | 120 |
| Allowing Jane to Focus on Marcus by Clarice Warrick | 123 |
| Supporting a Mother's Love by Linda McAdam | 126 |
| Being Strong for Teresa by Joanne Clarkson | 129 |
| A Tribute to My Mother by Anna Jaworski | 133 |
| Chapter Eight: Mothers Around the World | |
| A Little Bit of Heaven—Canada by Carolyn Thompson | 138 |
| A Miracle—Germany by Beate Lemmer | 142 |
| Chrysanthemums for Paesan—Singapore by Helen Ng | 147 |
| Running the Race—Australia by Lyn Chappell | 152 |
| A Light in My Life—New Zealand by Jasmina Henderson-Rauter | 157 |
| Chapter Nine: Mothers in the Hospital | |
| Our Love for Alex by Julie Schlapfer | 172 |
| Supporting Sadie by Holly Scheyer | 174 |
| Finding the Good by Patty Roswick | 179 |
| A Mommy's Feelings by Tracy Adams | 180 |
| Chapter Ten: Teaching Others, Learning Ourselves | |
| Internet Innovator: Mona Barmash | 184 |
| Resourceful Librarian: Alysanne Crymes | 186 |
| Joining the AHA: Michelle Rintamaki | 186 |
| Saving Our Children Through Educating Ourselves by Lenore Cameron | 188 |
| Chapter Eleven: Mothers As Advocates | |
| How To Be An Advocate by Tricia Christensen | 194 |
| Working with the Media: Jane Hunt | 200 |
| Seeing Myself as an Advocate: Anna Jaworski | 202 |
| Helping a Friend: Sheri Berger | 203 |
| HLHS Resource: Laura Ulaszek | 204 |
| CHD Leader: Sally Pearson | 205 |
| Support/Advocacy Groups | 207 |
| Chapter Twelve: Shooting Stars | |
| My Candle in the Wind by Deb Gilmore | 214 |
| 387 Pictures by Aleta Riesberg | 217 |
| An Angel's Cause by Deirdre Bronchick | 226 |
| My Shooting Star by Jan Heckman | 232 |
| Face of a Child by Dolly Lee | 234 |
| Hope | |
| Chapter Thirteen: Life After Surgery | |
| A Birthday Reminiscence by Deanna Brennan | 237 |
| Having a Healthy Baby by Deb Chapman | 240 |
| An Anniversary by Anna Jaworski | 247 |
| Chapter Fourteen: Mothers With Congenital Heart Defects | |
| Mind Over Matter by Michelle Veschi | 251 |
| Leading the Troops by Carolyn Wise | 253 |
| A Baby for Allison by Allison Matthews | 257 |
| A Healthy Baby by Becky Blauvelt | 260 |
| Chapter Fifteen: Rites of Passage | |
| Summer Camp by Beth Hutchinson | 268 |
| Moving Day by Arlyn Kerr | 273 |
| Karen's New Car by Mary Kay Klein | 279 |
| Victoria's Ski Trip by Rita Scoggins | 282 |
| Camp Del Corazon by Jill Sorensen | 284 |
| When Milestones Become Miracles by Cheryl Goldstein | 286 |
| Appendix A: Native Language Essays | |
| Lebens und Leidensweq eines herzkranken Kindes (Beate Lemmer) | 293 |
| Tjasijeva Zgodba (Jasmina Henderson-Rauter) | 297 |
| Appendix B: Summer Camps (in the United States) | 305 |
| Appendix C: Cardiac Anatomy | |
| Basic Heart Anatomy | 307 |
| Pediatric Heart Anatomy | 308 |
| Glossary of Terms | 309 |
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