Hypoplastic Left Heart Syndrome: A Handbook for Parents

Table of Contents
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i. Preface by Anna Jaworski
ii. Warning / Disclaimer
iii. Acknowledgements
iv. Foreword by John Calhoon, M.D.
I. Alexander's Story 15
II. Matthew's Story 21
III. Hypoplastic Left Heart Syndrome (HLHS) 25
IV. Normal Anatomy and Anatomical Defects  33
V. Testing and Diagnostic Equipment  41
VI. Surgical Procedures  45
VII. Surviving the Hospital Stay 51
VIII. Typical Post-Operative Schedule and Common Complications 55
IX. Between Surgeries 61
X. Planning for the Future 69
XI. Medications and Drugs 73
XII. Nutrition and Feeding  77
XIII. Physicians and Other Personnel  79
XIV. Social Services  81
XV. The Cycle of Life 87
XVI. Congenital Hearts:  A Support Group for Parents 91
XVII. Appendix A: Parents’ Guide to Infant CPR 97
Appendix B: Parent's Guide to Unconscious Infant with Airway Obstruction 99
Appendix C: Glossary 101
XVIII. References 103
XIX. Index 107

DISCLAIMER:
This book is designed to provide supplementary information to parents. This information is not intended as a substitute for medical advice. Parents should consult with medical personnel whenever they feel compelled, regardless of what is written in this book.
Much of this book is the author's opinion and should be read with that in mind. Surgeries, theories, and information are constantly changing. This book is not meant as an authoritative text on Hypoplastic Left Heart Syndrome, but, simply as a starting place for parents. Parents are encouraged to visit their local university library to use Medline or some other computerized search of current medical journals for more in-depth discussions on any of the topics addressed here.
Every effort has been made to make this handbook as accurate as possible; however, there may be mistakes both typographical and in content. Consequently, this book should only be used as a general guide and not as an ultimate source of medical information on Hypoplastic Left Heart Syndrome.
The purpose of this book is to inform parents of basic information with regard to Hypoplastic Left Heart Syndrome. The author and Baby Hearts Press shall have neither liability nor responsibility to any person or entity with respect to any loss or damage caused, or alleged to be caused, directly or indirectly by the information contained in this book.
If you do not wish to be bound by the above, you may return this book to the publisher for a full refund.

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